Skip to main content

Research Repository

Advanced Search

All Outputs (78)

Institutional injustice: Implications for system transformation emerging from the mental health recovery narratives of people experiencing marginalisation (2021)
Journal Article
Hui, A., Rennick-Egglestone, S., Franklin, D., Walcott, R., Llewellyn-Beardsley, J., Ng, F., …Slade, M. (2021). Institutional injustice: Implications for system transformation emerging from the mental health recovery narratives of people experiencing marginalisation. PLoS ONE, 16(4), Article e0250367. https://doi.org/10.1371/journal.pone.0250367

Background: Institutional injustice refers to structures that create disparities in resources, opportunities and representation. Marginalised people experience institutional injustice, inequalities and discrimination through intersecting personal c... Read More about Institutional injustice: Implications for system transformation emerging from the mental health recovery narratives of people experiencing marginalisation.

Advance care planning in patients with advanced cancer: A 6-country, cluster-randomised clinical trial (2020)
Journal Article
Korfage, I. J., Carreras, G., Arnfeldt Christensen, C. M., Billekens, P., Bramley, L., Briggs, L., …Rietjens, J. A. C. (2020). Advance care planning in patients with advanced cancer: A 6-country, cluster-randomised clinical trial. PLoS Medicine, 17(11), Article e1003422. https://doi.org/10.1371/journal.pmed.1003422

Background: Advance care planning (ACP) supportsindividuals to define, discuss, and record goals and preferences for future medical treatment and care. Despite being internationally recommended, randomized clinical trials of ACP in patients with adva... Read More about Advance care planning in patients with advanced cancer: A 6-country, cluster-randomised clinical trial.

Opportunities, Enablers, and Barriers to the Use of Recorded Recovery Narratives in Clinical Settings (2020)
Journal Article
Roe, J., Brown, S., Yeo, C., Rennick-Egglestone, S., Repper, J., Ng, F., …Slade, M. (2020). Opportunities, Enablers, and Barriers to the Use of Recorded Recovery Narratives in Clinical Settings. Frontiers in Psychiatry, 11, Article 589731. https://doi.org/10.3389/fpsyt.2020.589731

© Copyright © 2020 Roe, Brown, Yeo, Rennick-Egglestone, Repper, Ng, Llewelyn-Beardsley, Hui, Cuijpers, Thornicroft, Manley, Pollock and Slade. Background: Recorded Recovery Narratives (RRNs) describing first-person lived experience accounts of recove... Read More about Opportunities, Enablers, and Barriers to the Use of Recorded Recovery Narratives in Clinical Settings.

The VOICES Typology of Curatorial Decisions in Narrative Collections of the Lived Experiences of Mental Health Service Use, Recovery, or Madness: Qualitative Study (2020)
Journal Article
Yeo, C., Hare-Duke, L., Rennick-Egglestone, S., Bradstreet, S., Callard, F., Hui, A., …Slade, M. (2020). The VOICES Typology of Curatorial Decisions in Narrative Collections of the Lived Experiences of Mental Health Service Use, Recovery, or Madness: Qualitative Study. JMIR Mental Health, 7(9), Article e16290. https://doi.org/10.2196/16290

Protocol for the process evaluation of the Promoting Activity, Independence and stability in early Dementia (PrAISED), following changes required by the COVID-19 pandemic (2020)
Journal Article
Di Lorito, C., Bosco, A., Goldberg, S., das Nair, R., O'Brien, R., Howe, L., …Harwood, R. (2020). Protocol for the process evaluation of the Promoting Activity, Independence and stability in early Dementia (PrAISED), following changes required by the COVID-19 pandemic. BMJ Open, 10(8), https://doi.org/10.1136/bmjopen-2020-039305

Introduction. The PrAISED Randomised Controlled Trial (RCT) is evaluating a home-based, face-to-face, individually tailored, activity and exercise programme for people living with dementia. Social distancing requirements following the COVID-19 pandem... Read More about Protocol for the process evaluation of the Promoting Activity, Independence and stability in early Dementia (PrAISED), following changes required by the COVID-19 pandemic.

Impact of receiving recorded mental health recovery narratives on quality of life in people experiencing psychosis, people experiencing other mental health problems and for informal carers: Narrative Experiences Online (NEON) study protocol for three randomised controlled trials (2020)
Journal Article
Rennick-Egglestone, S., Elliott, R., Smuk, M., Robinson, C., Bailey, S., Smith, R., …Slade, M. (2020). Impact of receiving recorded mental health recovery narratives on quality of life in people experiencing psychosis, people experiencing other mental health problems and for informal carers: Narrative Experiences Online (NEON) study protocol for three randomised controlled trials. Trials, 21, Article 661. https://doi.org/10.1186/s13063-020-04428-6

BACKGROUND: Mental health recovery narratives have been defined as first-person lived experience accounts of recovery from mental health problems which refer to events or actions over a period of time and which include elements of adversity or strugg... Read More about Impact of receiving recorded mental health recovery narratives on quality of life in people experiencing psychosis, people experiencing other mental health problems and for informal carers: Narrative Experiences Online (NEON) study protocol for three randomised controlled trials.

An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study (2020)
Journal Article
Wilson, E., Caswell, G., Latif, A., Anderson, C., Faull, C., & Pollock, K. (2020). An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study. BMC Palliative Care, 19, Article 66. https://doi.org/10.1186/s12904-020-0537-z

BACKGROUND: The management of medicines towards the end of life can place increasing burdens and responsibilities on patients and families. This has received little attention yet it can be a source of great difficulty and distress patients and famili... Read More about An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study.

What do family caregivers want from domiciliary care for relatives living with dementia? a qualitative study (2020)
Journal Article
Pollock, K., Wilkinson, S., Perry-Young, L., Turner, N., & Schneider, J. (2021). What do family caregivers want from domiciliary care for relatives living with dementia? a qualitative study. Ageing and Society, 41(9), 2060-2073. https://doi.org/10.1017/S0144686X20000185

In the current ecology of care, social, rather than medical, support is critical in enabling frail older people to live at home. This paper reports findings from a qualitative study about how home care workers (HCWs) support persons with dementia li... Read More about What do family caregivers want from domiciliary care for relatives living with dementia? a qualitative study.

External Validation of the ‘PHYT in Dementia’, a Theoretical Model Promoting Physical Activity in People with Dementia (2020)
Journal Article
Di Lorito, C., Bosco, A., Pollock, K., Harwood, R., das Nair, R., Logan, P., …van der Wardt, V. (2020). External Validation of the ‘PHYT in Dementia’, a Theoretical Model Promoting Physical Activity in People with Dementia. International Journal of Environmental Research and Public Health, 17(5), Article 1544. https://doi.org/10.3390/ijerph17051544

Physical activity is beneficial for people with dementia. We previously developed a theoretical model to explain behaviour change in physical activity in dementia (PHYT-in-dementia). This study aimed to externally validate the model. Validation occur... Read More about External Validation of the ‘PHYT in Dementia’, a Theoretical Model Promoting Physical Activity in People with Dementia.

A randomised controlled trial of an exercise intervention promoting activity, independence and stability in older adults with mild cognitive impairment and early dementia (PrAISED) - A Protocol (2019)
Journal Article
Bajwa, R. K., Goldberg, S. E., Van Der Wardt, V., Burgon, C., Di Lorito, C., Godfrey, M., …Harwood, R. H. (2019). A randomised controlled trial of an exercise intervention promoting activity, independence and stability in older adults with mild cognitive impairment and early dementia (PrAISED) - A Protocol. Trials, 20(1), Article 815. https://doi.org/10.1186/s13063-019-3871-9

© 2019 The Author(s). Background: People with dementia progressively lose cognitive and functional abilities. Interventions promoting exercise and activity may slow decline. We developed a novel intervention to promote activity and independence and p... Read More about A randomised controlled trial of an exercise intervention promoting activity, independence and stability in older adults with mild cognitive impairment and early dementia (PrAISED) - A Protocol.

The mechanisms and processes of connection: developing a causal chain model capturing impacts of receiving recorded mental health recovery narratives (2019)
Journal Article
Ng, F., Charles, A., Pollock, K., Rennick-Egglestone, S., Cuijpers, P., Gillard, S., …Slade, M. (2019). The mechanisms and processes of connection: developing a causal chain model capturing impacts of receiving recorded mental health recovery narratives. BMC Psychiatry, 19, https://doi.org/10.1186/s12888-019-2405-z

Background: Mental health recovery narratives are a core component of recovery-oriented interventions such as peer support and anti-stigma campaigns. A substantial number of recorded recovery narratives are now publicly available online in different... Read More about The mechanisms and processes of connection: developing a causal chain model capturing impacts of receiving recorded mental health recovery narratives.

Promoting activity, Independence and stability in early dementia (PrAISED): a, multisite, randomised controlled, feasibility trial (2019)
Journal Article
Goldberg, S. E., van der Wardt, V., Brand, A., Burgon, C., Bajwa, R., Hoare, Z., …on behalf of the PrAISED Study Group. (2019). Promoting activity, Independence and stability in early dementia (PrAISED): a, multisite, randomised controlled, feasibility trial. BMC Geriatrics, 19(1), Article 353. https://doi.org/10.1186/s12877-019-1379-5

BACKGROUND: We tested the feasibility of delivering and evaluating a complex therapy intervention which aimed to promote activity and independence for people with early dementia (PrAISED). Feasibility questions were on: recruitment, randomisation, in... Read More about Promoting activity, Independence and stability in early dementia (PrAISED): a, multisite, randomised controlled, feasibility trial.

The impact of mental health recovery narratives on recipients experiencing mental health problems: qualitative analysis and change model (2019)
Journal Article
Rennick-Egglestone, S., Ramsay, A., McGranahan, R., Llewellyn-Beardsley, J., Hui, A., Pollock, K., …Slade, M. (2019). The impact of mental health recovery narratives on recipients experiencing mental health problems: qualitative analysis and change model. PLoS ONE, 14(12), e0226201. https://doi.org/10.1371/journal.pone.0226201

© 2019 Rennick-Egglestone et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and so... Read More about The impact of mental health recovery narratives on recipients experiencing mental health problems: qualitative analysis and change model.

An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study. An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study. (2019)
Working Paper
Wilson, E., Caswell, G., Latif, A., Anderson, C., Faull, C., & Pollock, K. An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study. An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study

Background: The management of medicines towards the end of life can place increasing burdens and responsibilities on patients and families. This has received little attention yet it can be a source of great difficulty and distress patients and famili... Read More about An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study. An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study..

Trained facilitators’ experiences with structured advance care planning conversations in oncology: an international focus group study within the ACTION trial (2019)
Journal Article
Zwakman, M., On behalf of the ACTION consortium, Pollock, K., Bulli, F., Caswell, G., Červ, B., …Kars, M. C. (2019). Trained facilitators’ experiences with structured advance care planning conversations in oncology: an international focus group study within the ACTION trial. BMC Cancer, 19(1), Article 1026. https://doi.org/10.1186/s12885-019-6170-7

Abstract Background: In oncology, Health Care Professionals often experience conducting Advance Care Planning (ACP) conversations as difficult and are hesitant to start them. A structured approach could help to overcome this. In the ACTION trial,... Read More about Trained facilitators’ experiences with structured advance care planning conversations in oncology: an international focus group study within the ACTION trial.

Not the story you want? Assessing the fit of a conceptual framework characterising mental health recovery narratives (2019)
Journal Article
Llewellyn-Beardsley, J., Rennick-Egglestone, S., Bradstreet, S., Davidson, L., Franklin, D., Hui, A., …Slade, M. (2020). Not the story you want? Assessing the fit of a conceptual framework characterising mental health recovery narratives. Social Psychiatry and Psychiatric Epidemiology, 55, 295–308. https://doi.org/10.1007/s00127-019-01791-x

Narratives of recovery have been central to the development of the recovery approach in mental health. However, there has been a lack of clarity around definitions. A recent conceptual framework characterised recovery narratives based on a systematic... Read More about Not the story you want? Assessing the fit of a conceptual framework characterising mental health recovery narratives.