All Outputs (5)

Informal carers’ experiences of caring for someone with Multiple Sclerosis: A photovoice investigation (2020)
Journal Article
Topcu, G., Buchanan, H., Aubeeluck, A., & Ülsever, H. (2021). Informal carers’ experiences of caring for someone with Multiple Sclerosis: A photovoice investigation. British Journal of Health Psychology, 26(2), 360-384. https://doi.org/10.1111/bjhp.12482

Objectives: This study explores the lived experiences of carers of people with Multiple Sclerosis (MS), specifically in relation to their quality of life (QoL), through the use of images and narratives, with the aim of gaining a nuanced insight into... Read More about Informal carers’ experiences of caring for someone with Multiple Sclerosis: A photovoice investigation.

Developing a clinical pathway to identify and manage cognitive problems in Multiple Sclerosis: Qualitative findings from patients, family members, charity volunteers, clinicians and healthcare commissioners (2020)
Journal Article
Smith, L., Elwick, H., Mhizha-Murira, J., Topcu, G., Bale, C., Evangelou, N., …Das Nair, R. (2021). Developing a clinical pathway to identify and manage cognitive problems in Multiple Sclerosis: Qualitative findings from patients, family members, charity volunteers, clinicians and healthcare commissioners. Multiple Sclerosis and Related Disorders, 49, Article 102563. https://doi.org/10.1016/j.msard.2020.102563

Background: Cognitive problems are a common and debilitating symptom of multiple sclerosis (MS). Screening and treatment for cognitive problems are recommended, however these are not routinely delivered in UK clinics. We collected and synthesised... Read More about Developing a clinical pathway to identify and manage cognitive problems in Multiple Sclerosis: Qualitative findings from patients, family members, charity volunteers, clinicians and healthcare commissioners.

Psychosocial adjustment to multiple sclerosis diagnosis: A meta-review of systematic reviews (2020)
Journal Article
Topcu, G., Griffiths, H., Bale, C., Trigg, E., Clarke, S., Potter, K., …das Nair, R. (2020). Psychosocial adjustment to multiple sclerosis diagnosis: A meta-review of systematic reviews. Clinical Psychology Review, 82, Article 101923. https://doi.org/10.1016/j.cpr.2020.101923

This meta-review aimed to synthesise evidence on psychosocial adjustment to multiple sclerosis, to identify available treatment models and services for recently diagnosed individuals, and to explore their effectiveness. MEDLINE, CINAHL, EMBASE, PsycI... Read More about Psychosocial adjustment to multiple sclerosis diagnosis: A meta-review of systematic reviews.

The notion of “invisibility” in people’s experiences of the symptoms of multiple sclerosis: a systematic meta-synthesis (2020)
Journal Article
Parker, L. S., Topcu, G., De Boos, D., & das Nair, R. (2021). The notion of “invisibility” in people’s experiences of the symptoms of multiple sclerosis: a systematic meta-synthesis. Disability and Rehabilitation, 43(23), 3276-3290. https://doi.org/10.1080/09638288.2020.1741698

© 2021 Informa UK Limited, trading as Taylor & Francis Group. Purpose: Invisible symptoms have a negative impact on people living with Multiple Sclerosis (MS), related to the very notion that they are “unseen.” It is important to understand the not... Read More about The notion of “invisibility” in people’s experiences of the symptoms of multiple sclerosis: a systematic meta-synthesis.

Experiences of adjustment to secondary progressive multiple sclerosis: a meta-ethnographic systematic review (2020)
Journal Article
Meek, C., Topcu, G., Moghaddam, N., & das Nair, R. (2021). Experiences of adjustment to secondary progressive multiple sclerosis: a meta-ethnographic systematic review. Disability and Rehabilitation, 43(22), 3135-3146 . https://doi.org/10.1080/09638288.2020.1734105

Purpose: To provide an overview of the experiences and needs of patients adjusting to life after receiving a diagnosis of secondary progressive multiple sclerosis (SPMS). Method: We conducted a meta-ethnographic synthesis of qualitative studies on... Read More about Experiences of adjustment to secondary progressive multiple sclerosis: a meta-ethnographic systematic review.