All Outputs (7)

Working with the patient and clinical community to deliver clinical research in cystic fibrosis: James Lind CF Phase II (2018)
Other
Smith, S., Rowbotham, N. J., & Smyth, A. R. (2018). Working with the patient and clinical community to deliver clinical research in cystic fibrosis: James Lind CF Phase II. London

This is a protocol which sets out the aims, objectives and commitments of the second phase of the James Lind Alliance Priority Setting Partnership in Cystic Fibrosis and the basic roles and responsibilities of the partners therein. The James Lind... Read More about Working with the patient and clinical community to deliver clinical research in cystic fibrosis: James Lind CF Phase II.

Cystic Fibrosis James Lind Alliance Priority Setting Partnership PROTOCOL [updated 13 July 2016]
Other
Smyth, A. R., Rowbotham, N. J., McPhee, M., & Smith, S. Cystic Fibrosis James Lind Alliance Priority Setting Partnership PROTOCOL [updated 13 July 2016]

The purpose of this protocol is to set out the aims, objectives and commitments of the Cystic Fibrosis Priority Setting Partnership (PSP) and the basic roles and responsibilities of the partners therein.

Cystic Fibrosis James Lind Alliance Priority Setting Partnership PROTOCOL [5 February 2016]
Other
Smyth, A. R., Rowbotham, N. J., McPhee, M., & Smith, S. Cystic Fibrosis James Lind Alliance Priority Setting Partnership PROTOCOL [5 February 2016]

The purpose of this protocol is to set out the aims, objectives and commitments of the Cystic Fibrosis Priority Setting Partnership (PSP) and the basic roles and responsibilities of the partners therein.

A systematic review to identify how the current clinical trials landscape reflects the James Lind Alliance top 10 research priorities for cystic fibrosis
Other
Kalaitzis, I., Rowbotham, N. J., Smith, S., & Smyth, A. A systematic review to identify how the current clinical trials landscape reflects the James Lind Alliance top 10 research priorities for cystic fibrosis

This is a protocol to describe the methodology for a systematic review of clinical trials registries to identify intervention trials in the treatment of CF and map them to priorities for CF research.

Using digital technology for adherence, home monitoring and self-management in cystic fibrosis: Protocol for a state of the art review
Other
Calthorpe, R., Smyth, A., Smith, S., & Gathercole, K. Using digital technology for adherence, home monitoring and self-management in cystic fibrosis: Protocol for a state of the art review

Exploring the challenges of accessing medications for patients with cystic fibrosis
Other
Herbert, S., Rowbotham, N., Smith, S., & Smyth, A. Exploring the challenges of accessing medications for patients with cystic fibrosis

A systematic review to identify how the current clinical trials landscape reflects the 2017 James Lind Alliance top ten research priorities for cystic fibrosis five years on.
Other
Smith, S., Rowbotham, N., & Smyth, A. A systematic review to identify how the current clinical trials landscape reflects the 2017 James Lind Alliance top ten research priorities for cystic fibrosis five years on. [Trial protocol]

The review aims to identify current clinical trials on cystic fibrosis treatments and to find out how well these trials reflect the JLA top ten priorities for research (2017) and the refreshed top ten released on 23rd November 2022. This is a proto... Read More about A systematic review to identify how the current clinical trials landscape reflects the 2017 James Lind Alliance top ten research priorities for cystic fibrosis five years on..