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All Outputs (78)

Pragmatic, feasibility randomized controlled trial of a recorded mental health recovery narrative intervention: narrative experiences online intervention for informal carers (NEON-C) (2024)
Journal Article
Ng, F., Rennick-Egglestone, S., Onwumere, J., Newby, C., Llewellyn-Beardsley, J., Yeo, C., …Slade, M. (2024). Pragmatic, feasibility randomized controlled trial of a recorded mental health recovery narrative intervention: narrative experiences online intervention for informal carers (NEON-C). Frontiers in Psychiatry, 14, Article 1272396. https://doi.org/10.3389/fpsyt.2023.1272396

Introduction: Informal carers of people with mental health problems often have unmet support needs. Mental health recovery narratives are increasingly accessible, but their relevance to and effect on informal carers have been minimally investigated.... Read More about Pragmatic, feasibility randomized controlled trial of a recorded mental health recovery narrative intervention: narrative experiences online intervention for informal carers (NEON-C).

Effectiveness and cost-effectiveness of online recorded recovery narratives in improving quality of life for people with non-psychotic mental health problems: a pragmatic randomized controlled trial (2024)
Journal Article
Slade, M., Rennick‐Egglestone, S., Elliott, R. A., Newby, C., Robinson, C., Gavan, S. P., …Llewellyn-Beardsley, J. (2024). Effectiveness and cost-effectiveness of online recorded recovery narratives in improving quality of life for people with non-psychotic mental health problems: a pragmatic randomized controlled trial. World Psychiatry, 23(1), 101-112. https://doi.org/10.1002/wps.21176

Narratives describing first-hand experiences of recovery from mental health problems are widely available. Emerging evidence suggests that engaging with mental health recovery narratives can benefit people experiencing mental health problems, but no... Read More about Effectiveness and cost-effectiveness of online recorded recovery narratives in improving quality of life for people with non-psychotic mental health problems: a pragmatic randomized controlled trial.

The financial costs of anticipatory prescribing: A retrospective observational study of prescribed, administered and wasted medications using community clinical records (2023)
Journal Article
Morgan, L., Barclay, S., Pollock, K., Massou, E., & Bowers, B. (2023). The financial costs of anticipatory prescribing: A retrospective observational study of prescribed, administered and wasted medications using community clinical records. Palliative Medicine, 37(10), 1554-1561. https://doi.org/10.1177/02692163231198372

Background: The prescribing of injectable end-of-life anticipatory medications ahead of possible need is recommended best practice. The financial costs of these medications have been little studied. Aim: To identify the costs of anticipatory medic... Read More about The financial costs of anticipatory prescribing: A retrospective observational study of prescribed, administered and wasted medications using community clinical records.

The facilitators and barriers to improving functional activity and wellbeing in people with dementia: A qualitative study from the Process Evaluation of Promoting Activity, Independence and Stability in Early Dementia (PrAISED) (2023)
Journal Article
Lorito, C. D., Van Der Wardt, V., Pollock, K., Howe, L., Booth, V., Logan, P., …Harwood, R. H. (2023). The facilitators and barriers to improving functional activity and wellbeing in people with dementia: A qualitative study from the Process Evaluation of Promoting Activity, Independence and Stability in Early Dementia (PrAISED). Age and Ageing, 52(8), Article afad166. https://doi.org/10.1093/ageing/afad166

Background. The PRomoting Activity, Independence and Stability in Early Dementia (PrAISED) study delivered an exercise and functional activity programme to participants living with dementia. A Randomised Controlled Trial (RCT) showed no measurable be... Read More about The facilitators and barriers to improving functional activity and wellbeing in people with dementia: A qualitative study from the Process Evaluation of Promoting Activity, Independence and Stability in Early Dementia (PrAISED).

Thinking ahead about medical treatments in advanced illness: a qualitative study of barriers and enablers in end-of-life care planning with patients and families from ethnically diverse backgrounds (2023)
Journal Article
Islam, Z., Pollock, K., Patterson, A., Hanjari, M., Wallace, L., Mururajani, I., …Faull, C. (2023). Thinking ahead about medical treatments in advanced illness: a qualitative study of barriers and enablers in end-of-life care planning with patients and families from ethnically diverse backgrounds. Health and Social Care Delivery Research, 11(7), https://doi.org/10.3310/jvfw4781

Background This study explored whether or not, and how, terminally ill patients from ethnically diverse backgrounds and their family caregivers think ahead about deterioration and dying, and explored their engagement with health-care professionals i... Read More about Thinking ahead about medical treatments in advanced illness: a qualitative study of barriers and enablers in end-of-life care planning with patients and families from ethnically diverse backgrounds.

“Nothing's changed, baby”: How the mental health narratives of people with multiple and complex needs disrupt the recovery framework (2023)
Journal Article
Llewellyn-Beardsley, J., Rennick-Egglestone, S., Callard, F., Pollock, K., Slade, M., & Edgley, A. (2023). “Nothing's changed, baby”: How the mental health narratives of people with multiple and complex needs disrupt the recovery framework. SSM - Mental Health, 3, Article 100221. https://doi.org/10.1016/j.ssmmh.2023.100221

The dominant narrative in mental health policy and practice has shifted in the 21st century from one of chronic ill health to a ‘recovery’ orientation. Knowledge of recovery is based on narratives of people with lived experience of mental distress. H... Read More about “Nothing's changed, baby”: How the mental health narratives of people with multiple and complex needs disrupt the recovery framework.

Anticipatory prescribing in community end-of-life care: systematic review and narrative synthesis of the evidence since 2017 (2023)
Journal Article
Bowers, B., Antunes, B. C. P., Etkind, S., Hopkins, S. A., Winterburn, I., Kuhn, I., …Barclay, S. (2023). Anticipatory prescribing in community end-of-life care: systematic review and narrative synthesis of the evidence since 2017. BMJ Supportive and Palliative Care, 13, e612-e623. https://doi.org/10.1136/spcare-2022-004080

Background: The anticipatory prescribing of injectable medications is recommended practice in controlling distressing symptoms in the last days of life. A 2017 systematic review found practice and guidance was based on inadequate evidence. Since then... Read More about Anticipatory prescribing in community end-of-life care: systematic review and narrative synthesis of the evidence since 2017.

Simultaneously reassuring and unsettling: a longitudinal qualitative study of community anticipatory medication prescribing for older patients (2022)
Journal Article
Bowers, B., Pollock, K., & Barclay, S. (2022). Simultaneously reassuring and unsettling: a longitudinal qualitative study of community anticipatory medication prescribing for older patients. Age and Ageing, 51(12), Article afac293. https://doi.org/10.1093/ageing/afac293

Background: The prescription of injectable anticipatory medications is widely accepted by clinicians to be key in facilitating effective last-days-of-life symptom control. Community end-of-life care and admission avoidance is particularly strongly ad... Read More about Simultaneously reassuring and unsettling: a longitudinal qualitative study of community anticipatory medication prescribing for older patients.

Talking about death and dying: Findings from deliberative discussion groups with members of the public (2022)
Journal Article
Wilson, E., Caswell, G., Turner, N., & Pollock, K. (2024). Talking about death and dying: Findings from deliberative discussion groups with members of the public. Mortality, 29(1), 176-192. https://doi.org/10.1080/13576275.2022.2136515

Talking about death and dying is promoted in UK health policy and practice, from a perception that to do so encourages people to plan for their end of life and so increase their likelihood of experiencing a good death. This encouragement occurs along... Read More about Talking about death and dying: Findings from deliberative discussion groups with members of the public.

‘It’s Not Like in the Films’: Bereaved People’s Experiences of the Deathbed Vigil (2022)
Journal Article
Caswell, G., Wilson, E., Turner, N., & Pollock, K. (2022). ‘It’s Not Like in the Films’: Bereaved People’s Experiences of the Deathbed Vigil. OMEGA - Journal of Death and Dying, https://doi.org/10.1177/00302228221133413

This paper explores how people enact and experience the deathbed vigil when someone close to them is dying. It draws on qualitative interviews with 34 bereaved people carried out as part of a wider study exploring public perceptions of death and dyin... Read More about ‘It’s Not Like in the Films’: Bereaved People’s Experiences of the Deathbed Vigil.

How can advance care planning support hope in patients with advanced cancer and their families: A qualitative study as part of the international ACTION trial (2022)
Journal Article
Kodba-Čeh, H., Lunder, U., Bulli, F., Caswell, G., van Delden, J. J. M., Kars, M. C., …ACTION Consortium. (2022). How can advance care planning support hope in patients with advanced cancer and their families: A qualitative study as part of the international ACTION trial. European Journal of Cancer Care, 31(6), Article e1371. https://doi.org/10.1111/ecc.13719

Objective: Clinicians' fears of taking away patients' hope is one of the barriers to advance care planning (ACP). Research on how ACP supports hope is scarce. We have taken up the challenge to specify ways in which ACP conversations may potentially s... Read More about How can advance care planning support hope in patients with advanced cancer and their families: A qualitative study as part of the international ACTION trial.

Patient and family caregiver perspectives of Advance Care Planning: qualitative findings from the ACTION cluster randomised controlled trial of an adapted respecting choices intervention (2022)
Journal Article
Pollock, K., Bulli, F., Caswell, G., Kodba-Čeh, H., Lunder, U., Miccinesi, G., …Kars, M. (2022). Patient and family caregiver perspectives of Advance Care Planning: qualitative findings from the ACTION cluster randomised controlled trial of an adapted respecting choices intervention. Mortality, https://doi.org/10.1080/13576275.2022.2107424

Advance Care Planning (ACP) is widely regarded as a component of good end-of-life care. However, findings from a qualitative international study of patient and family caregiver attitudes and preferences regarding ACP highlight participants’ ambivalen... Read More about Patient and family caregiver perspectives of Advance Care Planning: qualitative findings from the ACTION cluster randomised controlled trial of an adapted respecting choices intervention.

‘Maybe I Shouldn’t Talk’: The Role of Power in the Telling of Mental Health Recovery Stories (2022)
Journal Article
Llewellyn-Beardsley, J., Rennick-Egglestone, S., Pollock, K., Ali, Y., Watson, E., Franklin, D., …Edgley, A. (2022). ‘Maybe I Shouldn’t Talk’: The Role of Power in the Telling of Mental Health Recovery Stories. Qualitative Health Research, 32(12), 1828-1842. https://doi.org/10.1177/10497323221118239

Mental health ‘recovery narratives’ are increasingly used within teaching, learning and practice environments. The mainstreaming of their use has been critiqued by scholars and activists as a co-option of lived experience for organisational purposes.... Read More about ‘Maybe I Shouldn’t Talk’: The Role of Power in the Telling of Mental Health Recovery Stories.

Scoping review of end-of-life decision-making models used in dogs, cats and equids (2022)
Journal Article
Cameron, A., Pollock, K., Wilson, E., Burford, J., England, G., & Freeman, S. (2022). Scoping review of end-of-life decision-making models used in dogs, cats and equids. Veterinary Record, 191(4), Article e1730. https://doi.org/10.1002/vetr.1730

Background: End-of-life decisions for companion animals can be stressful for veterinarians and owners, and when delayed result in poor animal welfare. Delayed euthanasia has been identified as a particularly prominent issue for horses. This scoping r... Read More about Scoping review of end-of-life decision-making models used in dogs, cats and equids.

Communication strategies and persuasion as core components of shared decision-making for children with life-limiting conditions: A multiple case study (2021)
Journal Article
Popejoy, E., Almack, K., Manning, J. C., Johnston, B., & Pollock, K. (2022). Communication strategies and persuasion as core components of shared decision-making for children with life-limiting conditions: A multiple case study. Palliative Medicine, 36(3), 519-528. https://doi.org/10.1177/02692163211068997

Background Families and professionals caring for children with life-limiting conditions face difficult healthcare decisions. Shared decision-making is promoted in many countries, however little is known about factors influencing these processes.... Read More about Communication strategies and persuasion as core components of shared decision-making for children with life-limiting conditions: A multiple case study.

Managing medicines at the end of life: a position paper for health policy and practice (2021)
Journal Article
Latif, A., Faull, C., Waring, J., Wilson, E., Anderson, C., Avery, A., & Pollock, K. (2021). Managing medicines at the end of life: a position paper for health policy and practice. Journal of Health Organization and Management, 35(9), 368-377. https://doi.org/10.1108/JHOM-11-2020-0440

Purpose: The impact of population ageing is significant, multifaceted and characterised by frailty and multi-morbidity. The COVID-19 pandemic has accelerated care pathways and policies promoting self-management and home-based care. One under-research... Read More about Managing medicines at the end of life: a position paper for health policy and practice.

Managing medicines at the end of life: a position paper for health policy and practice (2021)
Journal Article
Latif, A., Faull, C., Waring, J., Wilson, E., Anderson, C., Avery, A., & Pollock, K. (2021). Managing medicines at the end of life: a position paper for health policy and practice. Journal of Health Organization and Management, 35(9), 368-377. https://doi.org/10.1108/JHOM-11-2020-0440

Purpose The impact of population aging is significant, multifaceted and characterised by frailty and multi-morbidity. The COVID-19 pandemic has accelerated care pathways and policies promoting self-management and home-based care. One under-researched... Read More about Managing medicines at the end of life: a position paper for health policy and practice.

Family and health-care professionals managing medicines for patients with serious and terminal illness at home: a qualitative study (2021)
Journal Article
Pollock, K., Wilson, E., Caswell, G., Latif, A., Caswell, A., Avery, A., …Faul, C. (2021). Family and health-care professionals managing medicines for patients with serious and terminal illness at home: a qualitative study. Health Services and Delivery Research, 9(14), 1-162. https://doi.org/10.3310/hsdr09140

Background More effective ways of managing symptoms of chronic and terminal illness enable patients to be cared for, and to die, at home. This requires patients and family caregivers to manage complex medicines regimens, including powerful painkille... Read More about Family and health-care professionals managing medicines for patients with serious and terminal illness at home: a qualitative study.

The Influence of Curator Goals on Collections of Lived Experience Narratives: A Qualitative Study (2021)
Journal Article
Yeo, C., Rennick-Egglestone, S., Armstrong, V., Borg, M., Charles, A., Duke, L. H., …Slade, M. (2021). The Influence of Curator Goals on Collections of Lived Experience Narratives: A Qualitative Study. Journal of Recovery in Mental Health, 4(2), 16-28

Objective: The aim of this study was to investigate how curator goals influence the design of curation processes for collections of mental health lived experience narratives. The objectives were (1) to characterize the goals of a range of curators of... Read More about The Influence of Curator Goals on Collections of Lived Experience Narratives: A Qualitative Study.

Recorded Mental Health Recovery Narratives as a Resource for People Affected by Mental Health Problems: Development of the Narrative Experiences Online (NEON) Intervention (2021)
Journal Article
Slade, M., Rennick-Egglestone, S., Llewellyn-Beardsley, J., Yeo, C., Roe, J., Bailey, S., …Ng, F. (2021). Recorded Mental Health Recovery Narratives as a Resource for People Affected by Mental Health Problems: Development of the Narrative Experiences Online (NEON) Intervention. JMIR Formative Research, 5(5), Article e24417. https://doi.org/10.2196/24417

Background: Social media platforms have enabled the sharing of digital narratives about health concerns on a substantial scale. Some health interventions have integrated digital health narratives, for example to give voice to under-represented popu... Read More about Recorded Mental Health Recovery Narratives as a Resource for People Affected by Mental Health Problems: Development of the Narrative Experiences Online (NEON) Intervention.