Research Repository

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Managing medicines for patients dying at home: a review of family caregivers’ experiences (2018)
Journal Article
Wilson, E., Caswell, G., Turner, N., & Pollock, K. (2018). Managing medicines for patients dying at home: a review of family caregivers’ experiences. Journal of Pain and Symptom Management, 56(6), 962-974. doi:10.1016/j.jpainsymman.2018.08.019

Context: Increased life expectancy, technical advances in treatment and symptom control, and the extension of palliative care in community settings not only lengthen life, but make it possible for many patients to be cared for, and to die, at home. M... Read More

Exploring caregivers’ experiences of caring for men with advanced prostate cancer in a resource-poor setting: a qualitative serial interview study (2018)
Conference Proceeding
Salifu, Y., Almack, K., & Caswell, G. (2018). Exploring caregivers’ experiences of caring for men with advanced prostate cancer in a resource-poor setting: a qualitative serial interview study

Background: Family caregivers who assume the responsibility of care for patients living with advanced diseases could have challenges especially in resource-poor settings. The bulk and responsibility for care are predominantly provided by the family c... Read More

‘I’ve no fear of dying alone’: exploring perspectives on living and dying alone (2017)
Journal Article
Caswell, G., & O'Connor, M. (in press). ‘I’ve no fear of dying alone’: exploring perspectives on living and dying alone. Mortality, doi:10.1080/13576275.2017.1413542. ISSN 1357-6275

Dying alone is portrayed as undesirable in terms of policy, health and social care provision, the wishes of family and friends, and in popular culture. Despite this, people do often die alone, both in institutional and domestic settings. This paper r... Read More

Agency in the context of social death: dying alone at home (2015)
Journal Article
Caswell, G., & O'Connor, M. (in press). Agency in the context of social death: dying alone at home. Contemporary Social Science, 10(3), doi:10.1080/21582041.2015.1114663. ISSN 2158-2041

Each year a number of bodies are found of people who have died alone at home and whose absence from daily life has not been noticed. Media reports tend either to cast these individuals as deviant, or wider society as having abandoned them to a lonely... Read More

Lung cancer diagnosed following emergency admission: a mixed methods study protocol to improve understanding of patients’ characteristics, needs, experiences and outcomes (2013)
Journal Article
characteristics, needs, experiences and outcomes. BMC Palliative Care, 12(May), doi:10.1186/1472-684X-12-24. ISSN 1472-684X

Background Lung cancer is the leading cause of death from cancer in England. About 40% of patients with lung cancer are diagnosed following an emergency admission (DFEA) to hospital. DFEA is more common in women, and more likely with increasing age... Read More