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All Outputs (20)

Expanding qualitative interviewing for studies involving adults with different communication needs: reflections on research with people living with motor neurone disease (2024)
Journal Article
Wilson, E. (in press). Expanding qualitative interviewing for studies involving adults with different communication needs: reflections on research with people living with motor neurone disease. International Journal of Qualitative Methods,

This article explores the challenges and adaptations we undertook to engage people with different communication needs, specifically those living with motor neurone disease (MND), in qualitative research interviews. While interviewing those in advance... Read More about Expanding qualitative interviewing for studies involving adults with different communication needs: reflections on research with people living with motor neurone disease.

Understanding living with tracheostomy ventilation for motor neuron disease and the implications for quality of life: a qualitative study protocol (2023)
Journal Article
Wilson, E., Turner, N., Faull, C., Palmer, J., Turner, M. R., & Davidson, S. (2023). Understanding living with tracheostomy ventilation for motor neuron disease and the implications for quality of life: a qualitative study protocol. BMJ Open, 13(3), Article e071624. https://doi.org/10.1136/bmjopen-2023-071624

Introduction: Home mechanical ventilation can be used to manage symptoms of breathlessness and sustain life for people living with motor neuron disease (plwMND). In the UK, less than 1% of plwMND use tracheostomy ventilation (TV). This contrasts with... Read More about Understanding living with tracheostomy ventilation for motor neuron disease and the implications for quality of life: a qualitative study protocol.

Talking about death and dying: Findings from deliberative discussion groups with members of the public (2022)
Journal Article
Wilson, E., Caswell, G., Turner, N., & Pollock, K. (2024). Talking about death and dying: Findings from deliberative discussion groups with members of the public. Mortality, 29(1), 176-192. https://doi.org/10.1080/13576275.2022.2136515

Talking about death and dying is promoted in UK health policy and practice, from a perception that to do so encourages people to plan for their end of life and so increase their likelihood of experiencing a good death. This encouragement occurs along... Read More about Talking about death and dying: Findings from deliberative discussion groups with members of the public.

‘It’s Not Like in the Films’: Bereaved People’s Experiences of the Deathbed Vigil (2022)
Journal Article
Caswell, G., Wilson, E., Turner, N., & Pollock, K. (2022). ‘It’s Not Like in the Films’: Bereaved People’s Experiences of the Deathbed Vigil. OMEGA - Journal of Death and Dying, https://doi.org/10.1177/00302228221133413

This paper explores how people enact and experience the deathbed vigil when someone close to them is dying. It draws on qualitative interviews with 34 bereaved people carried out as part of a wider study exploring public perceptions of death and dyin... Read More about ‘It’s Not Like in the Films’: Bereaved People’s Experiences of the Deathbed Vigil.

Scoping review of end-of-life decision-making models used in dogs, cats and equids (2022)
Journal Article
Cameron, A., Pollock, K., Wilson, E., Burford, J., England, G., & Freeman, S. (2022). Scoping review of end-of-life decision-making models used in dogs, cats and equids. Veterinary Record, 191(4), Article e1730. https://doi.org/10.1002/vetr.1730

Background: End-of-life decisions for companion animals can be stressful for veterinarians and owners, and when delayed result in poor animal welfare. Delayed euthanasia has been identified as a particularly prominent issue for horses. This scoping r... Read More about Scoping review of end-of-life decision-making models used in dogs, cats and equids.

Managing medicines at the end of life: a position paper for health policy and practice (2021)
Journal Article
Latif, A., Faull, C., Waring, J., Wilson, E., Anderson, C., Avery, A., & Pollock, K. (2021). Managing medicines at the end of life: a position paper for health policy and practice. Journal of Health Organization and Management, 35(9), 368-377. https://doi.org/10.1108/JHOM-11-2020-0440

Purpose: The impact of population ageing is significant, multifaceted and characterised by frailty and multi-morbidity. The COVID-19 pandemic has accelerated care pathways and policies promoting self-management and home-based care. One under-research... Read More about Managing medicines at the end of life: a position paper for health policy and practice.

Managing medicines at the end of life: a position paper for health policy and practice (2021)
Journal Article
Latif, A., Faull, C., Waring, J., Wilson, E., Anderson, C., Avery, A., & Pollock, K. (2021). Managing medicines at the end of life: a position paper for health policy and practice. Journal of Health Organization and Management, 35(9), 368-377. https://doi.org/10.1108/JHOM-11-2020-0440

Purpose The impact of population aging is significant, multifaceted and characterised by frailty and multi-morbidity. The COVID-19 pandemic has accelerated care pathways and policies promoting self-management and home-based care. One under-researched... Read More about Managing medicines at the end of life: a position paper for health policy and practice.

Family and health-care professionals managing medicines for patients with serious and terminal illness at home: a qualitative study (2021)
Journal Article
Pollock, K., Wilson, E., Caswell, G., Latif, A., Caswell, A., Avery, A., …Faul, C. (2021). Family and health-care professionals managing medicines for patients with serious and terminal illness at home: a qualitative study. Health Services and Delivery Research, 9(14), 1-162. https://doi.org/10.3310/hsdr09140

Background More effective ways of managing symptoms of chronic and terminal illness enable patients to be cared for, and to die, at home. This requires patients and family caregivers to manage complex medicines regimens, including powerful painkille... Read More about Family and health-care professionals managing medicines for patients with serious and terminal illness at home: a qualitative study.

An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study (2020)
Journal Article
Wilson, E., Caswell, G., Latif, A., Anderson, C., Faull, C., & Pollock, K. (2020). An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study. BMC Palliative Care, 19, Article 66. https://doi.org/10.1186/s12904-020-0537-z

BACKGROUND: The management of medicines towards the end of life can place increasing burdens and responsibilities on patients and families. This has received little attention yet it can be a source of great difficulty and distress patients and famili... Read More about An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study.

An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study. An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study. (2019)
Working Paper
Wilson, E., Caswell, G., Latif, A., Anderson, C., Faull, C., & Pollock, K. An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study. An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study

Background: The management of medicines towards the end of life can place increasing burdens and responsibilities on patients and families. This has received little attention yet it can be a source of great difficulty and distress patients and famili... Read More about An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study. An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study..

Managing medicines for patients dying at home: a review of family caregivers’ experiences (2018)
Journal Article
Wilson, E., Caswell, G., Turner, N., & Pollock, K. (2018). Managing medicines for patients dying at home: a review of family caregivers’ experiences. Journal of Pain and Symptom Management, 56(6), 962-974. https://doi.org/10.1016/j.jpainsymman.2018.08.019

Context: Increased life expectancy, technical advances in treatment and symptom control, and the extension of palliative care in community settings not only lengthen life, but make it possible for many patients to be cared for, and to die, at home. M... Read More about Managing medicines for patients dying at home: a review of family caregivers’ experiences.

Impact of the Macmillan specialist Care at Home service: a mixed methods evaluation across six sites (2018)
Journal Article
Johnston, B., Patterson, A., Bird, L., Wilson, E., Almack, K., Mathews, G., & Seymour, J. (2018). Impact of the Macmillan specialist Care at Home service: a mixed methods evaluation across six sites. BMC Palliative Care, 17(1), https://doi.org/10.1186/s12904-018-0281-9

Background: The Midhurst Macmillan Specialist Palliative Care at Home Service was founded in 2006 to improve community-based palliative care provision. Principal components include; early referral; home-based clinical interventions; close partnershi... Read More about Impact of the Macmillan specialist Care at Home service: a mixed methods evaluation across six sites.

The Oxford handbook of ethics at the end of life, edited by S. J. Younger and R. M. Arnold, New York, Oxford University Press, 2016, pp. 447, £97 (hardback), ISBN 978-0-19-997441-2 [Book review] (2017)
Journal Article
Wilson, E. (in press). The Oxford handbook of ethics at the end of life, edited by S. J. Younger and R. M. Arnold, New York, Oxford University Press, 2016, pp. 447, £97 (hardback), ISBN 978-0-19-997441-2 [Book review]. Mortality, 23(2), https://doi.org/10.1080/13576275.2017.1353487

The importance of interdisciplinary communication in the process of anticipatory prescribing (2017)
Journal Article
Wilson, E., & Seymour, J. (2017). The importance of interdisciplinary communication in the process of anticipatory prescribing. International Journal of Palliative Nursing, 23(3), 129-135. https://doi.org/10.12968/ijpn.2017.23.3.129

In the UK there has been a widespread introduction of ‘anticipatory prescribing’ in community based palliative care. This involves general practitioners (GPs) writing prescriptions in anticipation of them being needed and has been encouraged to try t... Read More about The importance of interdisciplinary communication in the process of anticipatory prescribing.

Anticipatory prescribing for end of life care in the community: a survey of community nurses in England (2016)
Journal Article
Wilson, E., & Seymour, J. (2016). Anticipatory prescribing for end of life care in the community: a survey of community nurses in England. Primary Health Care, 26(9), 22-27. https://doi.org/10.7748/phc.2016.e1151

Anticipatory prescribing is increasingly common in the UK, yet little is known about nurses’ roles in the process. As part of a wider study to explore this, a postal survey of 575 community/district, nursing home and palliative care nurses was undert... Read More about Anticipatory prescribing for end of life care in the community: a survey of community nurses in England.

Care and communication between health professionals and patients affected by severe or chronic illness in community care settings: a qualitative study of care at the end of life (2015)
Journal Article
Pollock, K., & Wilson, E. (2015). Care and communication between health professionals and patients affected by severe or chronic illness in community care settings: a qualitative study of care at the end of life. Health Services and Delivery Research, 3(31), https://doi.org/10.3310/hsdr03310

Background: Advance care planning (ACP) enables patients to consider, discuss and, if they wish, document their wishes and preferences for future care, including decisions to refuse treatment, in the event that they lose capacity to make decisions fo... Read More about Care and communication between health professionals and patients affected by severe or chronic illness in community care settings: a qualitative study of care at the end of life.

Anticipatory prescribing in end-of-life care (2014)
Journal Article
Wilson, E., Seymour, J. E., Morbey, H., Payne, S., Brown, J., & Seale, C. (2014). Anticipatory prescribing in end-of-life care. Nursing Times, 110(44),

Anticipatory prescriptions are often issued by GPs for patients nearing the end of life, ahead of symptoms they may experience. These prescriptions are often activated by nurses. This article summarises a study investigating nurses’ experiences of us... Read More about Anticipatory prescribing in end-of-life care.

Applying a healthcare model to Huntington's disease: the key worker approach (2014)
Journal Article
Wilson, E., Aubeeluck, A., & Pollock, K. (2014). Applying a healthcare model to Huntington's disease: the key worker approach. British Journal of Neuroscience Nursing, 10(5), https://doi.org/10.12968/bjnn.2014.10.5.214

This paper follows on from an overview of the literature and current policy for Huntington’s disease (HD) published by the BJNN (Wilson et al. 2014). The previous paper highlighted a paucity of knowledge in terms of best practice available for those... Read More about Applying a healthcare model to Huntington's disease: the key worker approach.

Administering anticipatory medications in end-of-life care: A qualitative study of nursing practice in the community and in nursing homes (2014)
Journal Article
Wilson, E., Morbey, H., Brown, J., Payne, S., Seale, C., & Seymour, J. (2015). Administering anticipatory medications in end-of-life care: A qualitative study of nursing practice in the community and in nursing homes. Palliative Medicine, 29(1), 60-70. https://doi.org/10.1177/0269216314543042

© The Author(s) 2014. Background: In the United Kingdom, an approach to improving end-of-life care has been the introduction of 'just in case' or 'anticipatory' medications. Nurses are often responsible for deciding when to use anticipatory medicatio... Read More about Administering anticipatory medications in end-of-life care: A qualitative study of nursing practice in the community and in nursing homes.