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All Outputs (34)

“I got confused when they said ‘you’re a girl’”: Trans men’s life histories and the regulation of gender (2023)
Book Chapter
Zottola, A., Jones, L., Mullany, L., & Pilnick, A. (2023). “I got confused when they said ‘you’re a girl’”: Trans men’s life histories and the regulation of gender. In G. Brookes, & M. Chałupnik (Eds.), Masculinities and Discourses of Men's Health (249-271). Palgrave Macmillan. https://doi.org/10.1007/978-3-031-38407-3_10

In this chapter, we analyse autobiographical narratives written by young transgender men who were patients at a British gender identity clinic. The narratives were part of a clinical diagnostic process in which participants were asked by clinicians t... Read More about “I got confused when they said ‘you’re a girl’”: Trans men’s life histories and the regulation of gender.

Conversation Analysis Based Simulation (CABS): A method for improving communication skills training for healthcare practitioners (2023)
Journal Article
Pilnick, A., O'Brien, R., Beeke, S., Goldberg, S., Murray, M., & Harwood, R. H. (2023). Conversation Analysis Based Simulation (CABS): A method for improving communication skills training for healthcare practitioners. Health Expectations, 26(6), 2461-2474. https://doi.org/10.1111/hex.13834

Background: Actors portraying simulated patients are widely used in communication skills training in healthcare, but debates persist over the authenticity of these interactions. However, healthcare professionals value simulation‐based training becaus... Read More about Conversation Analysis Based Simulation (CABS): A method for improving communication skills training for healthcare practitioners.

Storytelling and affiliation between healthcare staff in Schwartz Round interactions: A conversation analytic study (2023)
Journal Article
Atkins, S., Pilnick, A., Maben, J., & Thompson, L. (2023). Storytelling and affiliation between healthcare staff in Schwartz Round interactions: A conversation analytic study. Social Science and Medicine, 333, Article 116111. https://doi.org/10.1016/j.socscimed.2023.116111

It is well known that the demands of working in healthcare can take a psychological toll on staff. Schwartz Centre Rounds are an intervention aimed at supporting staff wellbeing through providing a forum to talk about the emotional, social and ethica... Read More about Storytelling and affiliation between healthcare staff in Schwartz Round interactions: A conversation analytic study.

Reconsidering patient‐centred care: Authority, expertise and abandonment (2023)
Journal Article
Pilnick, A. (2023). Reconsidering patient‐centred care: Authority, expertise and abandonment. Health Expectations, 26(5), 1785-1788. https://doi.org/10.1111/hex.13815

Patient-centred care is commonly framed as a means to guard against the problem of medical paternalism, exemplified in historical attitudes of ‘doctor knows best’. In this sense, patient-centred care (PCC) is often regarded as a moral imperative. Rev... Read More about Reconsidering patient‐centred care: Authority, expertise and abandonment.

Keeping the conversation going: How progressivity is prioritised in co-remembering talk between couples impacted by dementia (2022)
Journal Article
Slocombe, F., Peel, E., Pilnick, A., & Albert, S. (2022). Keeping the conversation going: How progressivity is prioritised in co-remembering talk between couples impacted by dementia. Health, https://doi.org/10.1177/13634593221127822

This article explores how partners keep the conversation going with people living with dementia (PLWD) when speaking about shared memories. Remembering is important for PLWD and their families. Indeed, memory loss is often equated with identity loss.... Read More about Keeping the conversation going: How progressivity is prioritised in co-remembering talk between couples impacted by dementia.

Research knowledge transfer to improve the care and support of adolescents with sickle cell disease in Ghana (2022)
Journal Article
Poku, B. A., & Pilnick, A. (2022). Research knowledge transfer to improve the care and support of adolescents with sickle cell disease in Ghana. Health Expectations, https://doi.org/10.1111/hex.13573

Introduction: Effective transfer of research findings to key knowledge users, particularly in low- and middle-income countries, is not always achieved, despite being a shared priority among researchers, funders, healthcare and community stakeholders... Read More about Research knowledge transfer to improve the care and support of adolescents with sickle cell disease in Ghana.

Biographical accounts of the impact of fatigue in young people with sickle cell disease (2022)
Journal Article
Poku, B. A., & Pilnick, A. (2022). Biographical accounts of the impact of fatigue in young people with sickle cell disease. Sociology of Health and Illness, 44(6), 1027-1046. https://doi.org/10.1111/1467-9566.13477

Children and young people (CYP) with sickle cell disease (SCD) are a 'missing voice' in the debate on biography and sociology of chronic illness, meaning we know little about the social consequences of the illness for CYP. This paper examines the mea... Read More about Biographical accounts of the impact of fatigue in young people with sickle cell disease.

Talking about learning disability: Discursive acts in managing an ideological dilemma (2022)
Journal Article
Cluley, V., Pilnick, A., & Fyson, R. (2022). Talking about learning disability: Discursive acts in managing an ideological dilemma. SSM - Qualitative Research in Health, 2, Article 100088. https://doi.org/10.1016/j.ssmqr.2022.100088

Learning disability is a term that can mean different things to different people. It is also a term that has undergone much revision and critique, being linked to stigma and prejudice. Consequently, talking about learning disability can be a delicate... Read More about Talking about learning disability: Discursive acts in managing an ideological dilemma.

How a child's gender mediates maternal care and expectations in the fatigue experiences of adolescents with sickle cell disease (2022)
Journal Article
Poku, B. A., Pilnick, A., & Kirk, S. (2023). How a child's gender mediates maternal care and expectations in the fatigue experiences of adolescents with sickle cell disease. Journal of Family Studies, 29(4), 1606-1627. https://doi.org/10.1080/13229400.2022.2060851

Despite the chronicity and biopsychosocial significance of fatigue in sickle cell disease (SCD), it is rarely prioritized in understanding illness experiences and the social consequences of SCD for children, young people and their families. This stud... Read More about How a child's gender mediates maternal care and expectations in the fatigue experiences of adolescents with sickle cell disease.

Avoiding repair, maintaining face: Responding to hard-to-interpret talk from people living with dementia in the acute hospital (2021)
Journal Article
Pilnick, A., O'Brien, R., Beeke, S., Goldberg, S., & Harwood, R. (2021). Avoiding repair, maintaining face: Responding to hard-to-interpret talk from people living with dementia in the acute hospital. Social Science and Medicine, 282, Article 114156. https://doi.org/10.1016/j.socscimed.2021.114156

People living with dementia (PLWD) are almost always admitted to the acute hospital for reasons unrelated to their dementia, finding themselves in the unfamiliar environment of a Health Care of Older Persons acute ward. The effect of this environment... Read More about Avoiding repair, maintaining face: Responding to hard-to-interpret talk from people living with dementia in the acute hospital.

Identifying coping strategies used by patients at a transgender health clinic through analysis of free text autobiographical narratives (2021)
Journal Article
Zottola, A., Jones, L., Pilnick, A., & Mullany, L. (2021). Identifying coping strategies used by patients at a transgender health clinic through analysis of free text autobiographical narratives. Health Expectations, 24(2), 719-727. https://doi.org/10.1111/hex.13222

Background This paper presents an analysis of 32 narratives written by patients waiting for assessment at a transgender health clinic (THC) in England. Narratives are autobiographical free texts, designed to allow patients to describe in their own... Read More about Identifying coping strategies used by patients at a transgender health clinic through analysis of free text autobiographical narratives.

Identifying coping strategies used by patients at a transgender health clinic through analysis of free?text autobiographical narratives (2021)
Journal Article
Zottola, A., Jones, L., Pilnick, A., Mullany, L., Bouman, W. P., & Arcelus, J. (2021). Identifying coping strategies used by patients at a transgender health clinic through analysis of free?text autobiographical narratives. Health Expectations, 24(2), 719-727. https://doi.org/10.1111/hex.13222

Background: This paper presents an analysis of 32 narratives written by patients waiting for assessment at a transgender health clinic (THC) in England. Narratives are autobiographical free texts, designed to allow patients to describe in their own w... Read More about Identifying coping strategies used by patients at a transgender health clinic through analysis of free?text autobiographical narratives.

Identifying coping strategies used by patients at a transgender health clinic through analysis of free text autobiographical narratives (2021)
Journal Article
Zottola, A., Jones, L., Pilnick, A., Mullany, L., Bouman, W. P., & Arcelus, J. (2021). Identifying coping strategies used by patients at a transgender health clinic through analysis of free text autobiographical narratives. Health Expectations, 24(2), 719-727. https://doi.org/10.1111/hex.13222

Background This paper presents an analysis of 32 narratives written by patients waiting for assessment at a transgender health clinic (THC) in England. Narratives are autobiographical free texts, designed to allow patients to describe in their own w... Read More about Identifying coping strategies used by patients at a transgender health clinic through analysis of free text autobiographical narratives.

Improving the inclusivity and credibility of visual research: interpretive engagement as a route to including the voices of people with learning disabilities in analysis (2020)
Journal Article
Cluley, V., Pilnick, A., & Fyson, R. (2021). Improving the inclusivity and credibility of visual research: interpretive engagement as a route to including the voices of people with learning disabilities in analysis. Visual Studies, 36(4-5), 524-536. https://doi.org/10.1080/1472586X.2020.1807402

Visual methods are often used in social science because of the potential for inclusivity and accessibility. In disability studies in particular, inclusive research is widely viewed as best practice and visual methods are often considered more accessi... Read More about Improving the inclusivity and credibility of visual research: interpretive engagement as a route to including the voices of people with learning disabilities in analysis.

When people living with dementia say ‘no’: Negotiating refusal in the acute hospital setting (2020)
Journal Article
O'Brien, R., Beeke, S., Pilnick, A., Goldberg, S. E., & Harwood, R. H. (2020). When people living with dementia say ‘no’: Negotiating refusal in the acute hospital setting. Social Science and Medicine, 263, Article 113188. https://doi.org/10.1016/j.socscimed.2020.113188

A quarter of UK acute hospital beds are occupied by people living with dementia (PLWD). Concerns have been raised by both policy makers and carers about the quality of communication between hospital staff and PLWD. PLWD may experience communication i... Read More about When people living with dementia say ‘no’: Negotiating refusal in the acute hospital setting.

Theorising disability: a practical and representative ontology of learning disability (2019)
Journal Article
Cluely, V., Fyson, R., & Pilnick, A. (2019). Theorising disability: a practical and representative ontology of learning disability. Disability and Society, 35(2), 235-257. https://doi.org/10.1080/09687599.2019.1632692

This article contributes to the ongoing development of the theorisation of learning disability, focusing on the value of the ontological turn. We argue that while social theory has influenced understandings of disability within academia, particularly... Read More about Theorising disability: a practical and representative ontology of learning disability.

The power of suggestion: examining the impact of presence or absence of shared first language in the antenatal clinic (2019)
Journal Article
Pilnick, A., & Zayts, O. (2019). The power of suggestion: examining the impact of presence or absence of shared first language in the antenatal clinic. Sociology of Health and Illness, 41(6), 1120-1137. https://doi.org/10.1111/1467-9566.12888

© 2019 Foundation for the Sociology of Health & Illness Healthcare encounters involving participants from diverse linguistic backgrounds are becoming more common due to the globalisation of health care and increasing migration levels. Research sugg... Read More about The power of suggestion: examining the impact of presence or absence of shared first language in the antenatal clinic.

A staff training intervention to improve communication between people living with dementia and health-care professionals in hospital: the VOICE mixed-methods development and evaluation study (2018)
Journal Article
Harwood, R. H., O’Brien, R., Goldberg, S. E., Allwood, R., Pilnick, A., Beeke, S., …Schneider, J. (2018). A staff training intervention to improve communication between people living with dementia and health-care professionals in hospital: the VOICE mixed-methods development and evaluation study. Health Services and Delivery Research, 6(41), 1-134. https://doi.org/10.3310/hsdr06410

Background 25% of hospital beds are occupied by a person living with dementia. Dementia affects expressive communication and understanding. Healthcare professionals report lack of communication skills training. Objectives To identify teachable ef... Read More about A staff training intervention to improve communication between people living with dementia and health-care professionals in hospital: the VOICE mixed-methods development and evaluation study.