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Caregiving in multiple sclerosis and quality of life: a meta-synthesis of qualitative research

Authors

GOGEM TOPCU Gogem.Topcu@nottingham.ac.uk
Programme Manager (Neuroms)

AIMEE AUBEELUCK aimee.aubeeluck@nottingham.ac.uk
Professor of Health Psychology Education

Garip



Abstract

Objective:
The lack of adequate conceptualisation and operationalisation of quality of life (QoL) limits the ability to have a consistent body of evidence to improve QoL research and practice in informal caregiving for people with multiple sclerosis (MS). Thus, we conducted a meta-synthesis of qualitative research to improve the conceptual understanding of the experiences of MS carers and to identify factors that affect carers' QoL.

Design:
Systematic searches of five electronic databases yielded 17 qualitative studies which were synthesised using the principles of meta-ethnography.

Results:
The synthesis resulted in nine inter-linking themes: Changes and losses; challenges revolving around MS; caregiving demands; burden of care; future concerns; external stressors; experiences of support; strategies used in managing the caregiving role; and motivating factors. Our findings suggest that MS carers can have both positive and negative experiences which may bring challenges and rewards to the carers.

Conclusion:
We present a proposed QoL model for MS caregiving which can be used to inform the development of interventions for MS carers to improve their QoL. However, further empirical research is needed to examine the utility of this model and to explore the concept of QoL in MS carers in more detail.

Citation

Topcu, G., Buchanan, H., Aubeeluck, A., & Garip, G. (2016). Caregiving in multiple sclerosis and quality of life: a meta-synthesis of qualitative research. Psychology and Health, 31(6), 693-710. https://doi.org/10.1080/08870446.2016.1139112

Journal Article Type Article
Acceptance Date Dec 31, 2015
Online Publication Date Feb 9, 2016
Publication Date Jan 9, 2016
Deposit Date Apr 6, 2017
Publicly Available Date Apr 6, 2017
Journal Psychology & Health
Electronic ISSN 0887-0446
Publisher Routledge
Peer Reviewed Peer Reviewed
Volume 31
Issue 6
Pages 693-710
DOI https://doi.org/10.1080/08870446.2016.1139112
Keywords Informal carers, Meta-ethnography, Meta-synthesis, Multiple sclerosis, Quality of life
Public URL https://nottingham-repository.worktribe.com/output/776743
Publisher URL https://doi.org/10.1080/08870446.2016.1139112
Related Public URLs https://www.ncbi.nlm.nih.gov/pubmed/26742505
Additional Information This is an Accepted Manuscript of an article published by Taylor & Francis in Psychology & Health on 09 Feb 2016, available online: http://www.tandfonline.com/10.1080/08870446.2016.1139112