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Lung cancer diagnosed following emergency admission: a mixed methods study protocol to improve understanding of patients’ characteristics, needs, experiences and outcomes

Wilcock, Andrew; Crosby, Vincent; Freer, Sarah; Freemantle, Alison; Caswell, Glenys; Seymour, Jane

Authors

Andrew Wilcock

Vincent Crosby

Sarah Freer

Alison Freemantle

Glenys Caswell

Jane Seymour

Abstract

Background
Lung cancer is the leading cause of death from cancer in England. About 40% of patients with lung cancer are diagnosed following an emergency admission (DFEA) to hospital. DFEA is more common in women, and more likely with increasing age and deprivation. Most have advanced disease and survival is poor, but little else is known about this group. The aim of this study is to obtain a detailed understanding of the characteristics, needs, experiences and outcomes of this group.

Methods/Design
This is a single centre study with quantitative and qualitative work packages (WP). WP1 gathers basic details about all patients diagnosed with lung cancer during a 12 month period, focusing on demographics, diagnostic and treatment pathways and selected outcomes. WP2 obtains information from those patients DFEA or, when unable, their carers, about their holistic needs and experiences, using the Sheffield Profile for Assessment and Referral to Care questionnaire and selected questions from the National Cancer Patient Experience Survey. WP3 uses in-depth qualitative interviews with patients and carers to obtain detailed accounts of their symptoms, help-seeking behaviours prior to admission and subsequent experiences of care.

Discussion
Relatively little is known about the experiences of lung cancer patients DFEA and this study will provide detailed information about their needs, characteristics, experiences and outcomes. It should identify areas in the diagnostic and treatment pathway where there is scope to improve the care provided to this group of patients and their carers. The findings will also inform the need for further focused research.

Journal Article Type Article
Publication Date May 28, 2013
Journal BMC Palliative Care
Electronic ISSN 1472-684X
Publisher Springer Verlag
Peer Reviewed Peer Reviewed
Volume 12
Issue May
Article Number 5
Institution Citation Wilcock, A., Crosby, V., Freer, S., Freemantle, A., Caswell, G., & Seymour, J. (2013). Lung cancer diagnosed following emergency admission: a mixed methods study protocol to improve understanding of patients’ characteristics, needs, experiences and outcomes. BMC Palliative Care, 12(May), doi:10.1186/1472-684X-12-24
DOI https://doi.org/10.1186/1472-684X-12-24
Keywords Carers, Diagnosis following emergency admission, Improving patient experience, Lung cancer
Publisher URL http://www.biomedcentral.com/1472-684X/12/24
Copyright Statement Copyright information regarding this work can be found at the following address: http://creativecommons.org/licenses/by/4.0

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Copyright Statement
Copyright information regarding this work can be found at the following address: http://creativecommons.org/licenses/by/4.0




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