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Impact of receiving recorded mental health recovery narratives on quality of life in people experiencing psychosis, people experiencing other mental health problems and for informal carers: Narrative Experiences Online (NEON) study protocol for three rand

Rennick-Egglestone, Stefan; Elliott, Rachel; Smuk, Melanie; Robinson, Clare; Bailey, Sylvia; Smith, Roger; Keppens, Jeroen; Hussain, Hannah; Pollock, Kristian; Cuijpers, Pim; Llewellyn-Beardsley, Joy; Ng, Fiona; Yeo, Caroline; Roe, James; Hui, Ada; Van Der Krieke, Lian; Walcott, Rianna; Slade, Mike

Authors

Stefan Rennick-Egglestone

Rachel Elliott

Melanie Smuk uk.melanie.smuk@lshtm.ac.uk.clare.robinson@qmul.ac.uk

Clare Robinson

Sylvia Bailey

Roger Smith

Jeroen Keppens uk.jeroen.keppens@kcl.ac.uk

Hannah Hussain hannah.hussain@manchester.ac.uk

Kristian Pollock

Pim Cuijpers

Joy Llewellyn-Beardsley joy.llewellyn-beardsley@nottingham.ac.uk

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DR FIONA NG FIONA.NG@NOTTINGHAM.AC.UK
Research Assistant on Theneon Study

Caroline Yeo caroline.yeo@nottingham.ac.uk

James Roe

Ada Hui ada.hui@nottingham.ac.uk

Lian Van Der Krieke

Rianna Walcott

Mike Slade m.slade@nottingham.ac.uk



Abstract

Background: Mental health recovery narratives have been defined as first-person lived experience accounts of recovery from mental health problems, which refer to events or actions over a period of time, and which include elements of adversity or struggle, and also self-defined strengths, successes, or survival. They are readily available in invariant recorded form, including as text, audio or video. Previous studies have provided evidence that receiving recorded recovery narratives can provide benefits to recipients. This protocol describes three pragmatic trials that will be conducted by the Narrative Experiences Online (NEON) study using the NEON Intervention, a web-application that delivers recorded recovery narratives to its users. The aim of the NEON Trial is to understand whether receiving online recorded recovery narratives through the NEON Intervention benefits people with experience of psychosis. The aim of the NEON-O and NEON-C trials is to evaluate the feasibility of conducting a definitive trial of the use of the NEON Intervention with people experiencing non-psychosis mental health problems and who care for others experiencing mental health problems respectively.
Methods: The NEON Trial will recruit 683 participants with experience of psychosis. The NEON-O Trial will recruit at least 100 participants with experience of non-psychosis mental health problems. The NEON-C Trial will recruit at least 100 participants with experience of caring for others who have experienced mental health problems. In all three trials, participants will be randomly allocated into one of two arms. Intervention arm participants will receive treatment as usual plus immediate access to the NEON Intervention for one year. Control arm participants will receive treatment as usual plus access to the NEON Intervention after one year. All participants will complete demographics and outcome measures at baseline, 1 weeks, 12 weeks and 52 weeks. For the NEON Trial, the primary outcome measure is the Manchester Short Assessment of Quality of Life at 52 weeks, and secondary outcome measures are CORE-10, Herth Hope index, Mental Health Confidence Scale and Meaning in Life questionnaire. A cost-effectiveness analysis will be conducted using data collected through the EQ5D-5L and the Client Services Receipt Inventory.
Discussion: NEON Trial analyses will establish both effectiveness and cost-effectiveness of the NEON Intervention for people with experience of psychosis, and hence inform future clinical recommendations for this population.
Trial registration: All trials were prospectively registered with ISRCTN. NEON Trial: ISRCTN11152837, registered 13 August 2018, http://www.isrctn.com/ISRCTN11152837. NEON-C Trial: ISRCTN76355273, registered 9 January 2020, http://www.isrctn.com/ISRCTN76355273. NEON-O Trial: ISRCTN63197153, registered 9 January 2020, http://www.isrctn.com/ISRCTN63197153.

Journal Article Type Article
Publication Date Jul 20, 2020
Journal Trials
Electronic ISSN 1745-6215
Publisher Springer Verlag
Peer Reviewed Peer Reviewed
Volume 21
Article Number 661
APA6 Citation Rennick-Egglestone, S., Elliott, R., Smuk, M., Robinson, C., Bailey, S., Smith, R., …Slade, M. (2020). Impact of receiving recorded mental health recovery narratives on quality of life in people experiencing psychosis, people experiencing other mental health problems and for informal carers: Narrative Experiences Online (NEON) study protocol for three randomised controlled trials. Trials, 21, https://doi.org/10.1186/s13063-020-04428-6
DOI https://doi.org/10.1186/s13063-020-04428-6
Publisher URL https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-020-04428-6
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