The unmet needs of stroke survivors and stroke caregivers: a systematic narrative review

Azah, Nor; Aziz, Abd; Fisher, Rebecca J; Ahmad, Kartini; Walker, Marion F

Abstract

Introduction: Facilitating stroke survivors and their caregivers to lead a fulfilling life after stroke requires service providers to think about their different needs. Poor post stroke care may lead to unmet needs in stroke survivors and stroke caregivers. This may compromise them in leading their lives optimally after stroke. Objectives & Methodology: This systematic narrative review examines articles published from 1990 to 2017, generated from Ovid, MEDLINE, CINAHL, and PubMed. The search was also supplemented by an examination of reference lists for related articles via Scopus. We included 105 articles. Findings: We found that the type of unmet needs in stroke survivors and the contributing factors were substantially different from their caregivers. The unmet needs in stroke survivors ranged from health-related needs to reintegration into the community; while the unmet needs in stroke caregivers ranged from information needs to support in caring for the stroke survivors and caring for themselves. Additionally, the unmet needs in both groups were associated with different factors. Conclusion: More research is required to understand the unmet needs of stroke survivors and stroke caregivers to improve the overall post-stroke care services.

Citation

Azah, N., Aziz, A., Fisher, R. J., Ahmad, K., & Walker, M. F. (2020). The unmet needs of stroke survivors and stroke caregivers: a systematic narrative review. Journal of Stroke and Cerebrovascular Diseases, 29(8), https://doi.org/10.1016/j.jstrokecerebrovasdis.2020.104875

• Journal Article Type: Article
• Acceptance Date: Apr 7, 2020
• Online Publication Date: May 23, 2020
• Publication Date: 2020-08
• Deposit Date: Apr 17, 2020
• Publicly Available Date: May 24, 2021
• Journal: Journal of Stroke and Cerebrovascular Diseases
• Print ISSN: 1052-3057
• Publisher: Elsevier
• Peer Reviewed: Peer Reviewed
• Volume: 29
• Issue: 8
• Article Number: 104875
• DOI: https://doi.org/10.1016/j.jstrokecerebrovasdis.2020.104875
• Keywords: Unmet needs; stroke; Stroke survivors; Stroke caregivers; Long-term stroke care
• Public URL: https://nottingham-repository.worktribe.com/output/4301307
• Publisher URL: https://www.sciencedirect.com/science/article/abs/pii/S105230572030269X