Computer-mediated infertility support groups: An exploratory study of online experiences

Malik, Sumaira H.; Coulson, Neil S.

Abstract

Objective: Over recent years the Internet has become an increasingly popular source of support and information for infertility, with a growing number of online support groups now available to individuals affected by fertility problems. The aims of the present study were therefore to explore the online experiences of individuals accessing infertility support groups via the Internet. Methods: Ninety-five participants who were recruited from several online infertility support groups completed an online questionnaire containing a series of open-ended questions. Responses to the open-ended questions were analysed using inductive thematic analysis. Results: The thematic analysis revealed five recurrent themes, which were labelled: 'unique features of online social support', 'improved relationship with partner', 'reduced sense of isolation', 'information and empowerment', and 'negative aspects of online communities.'. Conclusions: This study suggests that the majority of participants considered there to be a range of important benefits from accessing online communities. However the results also demonstrate that there are a number of disadvantages to online infertility support groups that may have an impact on the experiences of infertile individuals. Practice implications: Online support groups may provide a valuable forum through which health care professionals can better understand and support the psychosocial needs of individuals experiencing infertility. © 2008 Elsevier Ireland Ltd. All rights reserved.

Citation

Malik, S. H., & Coulson, N. S. (2008). Computer-mediated infertility support groups: An exploratory study of online experiences. Patient Education and Counseling, 73(1), 105-113. https://doi.org/10.1016/j.pec.2008.05.024

• Journal Article Type: Article
• Acceptance Date: May 19, 2008
• Online Publication Date: Jul 18, 2008
• Publication Date: 2008-10
• Deposit Date: Jan 7, 2021
• Journal: Patient Education and Counseling
• Print ISSN: 0738-3991
• Electronic ISSN: 1873-5134
• Publisher: Elsevier
• Peer Reviewed: Peer Reviewed
• Volume: 73
• Issue: 1
• Pages: 105-113
• DOI: https://doi.org/10.1016/j.pec.2008.05.024
• Public URL: https://nottingham-repository.worktribe.com/output/3161591
• Publisher URL: https://www.sciencedirect.com/science/article/abs/pii/S0738399108002723