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Holistic Needs of People with Thoracic Cancer Identified by the Sheffield Profile for Assessment and Referral to Care Questionnaire©

Wilcock, Andrew; Hussain, Asmah; Maddocks, Matthew

Authors

Asmah Hussain

Matthew Maddocks



Abstract

Background: A holistic needs assessment is recommended in people with cancer at key stages, including soon after diagnosis. For people with thoracic cancer, there is a lack of data obtained routinely at this time point.
Objective: To identify the most common and/or distressing supportive and palliative needs present soon after diagnosis using a specifically developed questionnaire.
Methods: As part of a local rehabilitation service, patients within 3–6 weeks of a diagnosis of thoracic cancer were invited to complete the SPARC© questionnaire.
Results: Over a 26 month period, 738 patients completed the questionnaire, representing about 70% of all patients diagnosed with thoracic cancer during this time. Respondents had a median [IQR] of 15 [11‒21] symptoms or issues, with 2 [0‒5], 4 [2‒7] and 7 [5‒11] causing ‘very much’, ‘quite a bit’ and ‘a little’ distress or bother respectively. The top five most frequent needs causing any degree of distress or bother were physical, present in 68–80% of patients: feeling tired, shortness of breath, cough, feeling sleepy in the day, changes in weight. Two psychological issues followed: worrying about effects of the illness on others, feeling anxious, both present in 67%. Despite most patients reporting talking to health professionals about their condition, 20–30% wanted further information.
Conclusions: These findings represent the largest cohort of patients with thoracic cancer completing the SPARC© questionnaire soon after diagnosis, and provide detailed information on the high level of need that thoracic oncology services must be able to respond to.

Journal Article Type Article
Publication Date Sep 1, 2019
Journal Journal of Palliative Medicine
Print ISSN 1096-6218
Electronic ISSN 1557-7740
Publisher Mary Ann Liebert
Peer Reviewed Peer Reviewed
Volume 22
Issue 9
Pages 1120-1123
APA6 Citation Wilcock, A., Hussain, A., & Maddocks, M. (2019). Holistic Needs of People with Thoracic Cancer Identified by the Sheffield Profile for Assessment and Referral to Care Questionnaire©. Journal of Palliative Medicine, 22(9), 1120-1123. https://doi.org/10.1089/jpm.2018.0540
DOI https://doi.org/10.1089/jpm.2018.0540
Publisher URL https://www.liebertpub.com/doi/full/10.1089/jpm.2018.0540
Additional Information Final publication is available from Mary Ann Liebert, Inc., publishers http://dx.doi.org/10.1089/jpm.2018.0540

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