Richard M. Smedley
Genetic testing for Huntington’s disease: A thematic analysis of online support community messages
Smedley, Richard M.; Coulson, Neil S.
Professor NEIL COULSON NEIL.COULSON@NOTTINGHAM.AC.UK
Professor of Health Psychology
Huntington’s disease is a fatal late-onset genetic illness that causes motor, cognitive and psychiatric disorders. Individuals considering genetic testing may benefit from online social support. This study investigates how genetic testing is discussed within health forums. 337 messages written by 58 individuals were analysed using deductive thematic analysis. Discussions examined three themes: deciding to be tested (enquiring about symptoms, starting a new family), preparing for the test (information seeking, attending appointments), and receiving the results (positive results, negative results). Forums can reduce the uncertainty of ambiguous symptoms, and provide ongoing personalized support before, during and after a genetic test.
|Journal Article Type||Article|
|Publication Date||Jan 30, 2019|
|Journal||Journal of Health Psychology|
|Peer Reviewed||Peer Reviewed|
|APA6 Citation||Smedley, R. M., Smedley, R., & Coulson, N. S. (2019). Genetic testing for Huntington’s disease: A thematic analysis of online support community messages. Journal of Health Psychology, https://doi.org/10.1177/1359105319826340|
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