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How can advance care planning support hope in patients with advanced cancer and their families: A qualitative study as part of the international ACTION trial

Kodba-Čeh, Hana; Lunder, Urška; Bulli, Francesco; Caswell, Glenys; van Delden, Johannes J. M.; Kars, Marijke C.; Korfage, Ida J.; Miccinesi, Guido; Rietjens, Judith A.C.; Seymour, Jane; Toccafondi, Alessandro; Zwakman, Marieke; Pollock, Kristian; ACTION Consortium

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Authors

Hana Kodba-Čeh

Urška Lunder

Francesco Bulli

Glenys Caswell

Johannes J. M. van Delden

Marijke C. Kars

Ida J. Korfage

Guido Miccinesi

Judith A.C. Rietjens

Jane Seymour

Alessandro Toccafondi

Marieke Zwakman

ACTION Consortium



Abstract

Objective: Clinicians' fears of taking away patients' hope is one of the barriers to advance care planning (ACP). Research on how ACP supports hope is scarce. We have taken up the challenge to specify ways in which ACP conversations may potentially support hope. Methods: In an international qualitative study, we explored ACP experiences of patients with advanced cancer and their personal representatives (PRs) within the cluster-randomised control ACTION trial. Using deductive analysis of data obtained in interviews following the ACP conversations, this substudy reports on a theme of hope. A latent thematic analysis was performed on segments of text relevant to answer the research question. Results: Twenty patients with advanced cancer and 17 PRs from Italy, the Netherlands, Slovenia, and the United Kingdom were participating in post-ACP interviews. Three themes reflecting elements that provide grounds for hope were constructed. ACP potentially supports hope by being (I) a meaningful activity that embraces uncertainties and difficulties; (II) an action towards an aware and empowered position; (III) an act of mutual care anchored in commitments. Conclusion: Our findings on various potentially hope supporting elements of ACP conversations provide a constructive way of thinking about hope in relation to ACP that could inform practice.

Citation

Kodba-Čeh, H., Lunder, U., Bulli, F., Caswell, G., van Delden, J. J. M., Kars, M. C., …ACTION Consortium. (2022). How can advance care planning support hope in patients with advanced cancer and their families: A qualitative study as part of the international ACTION trial. European Journal of Cancer Care, 31(6), Article e1371. https://doi.org/10.1111/ecc.13719

Journal Article Type Article
Acceptance Date Sep 14, 2022
Online Publication Date Sep 27, 2022
Publication Date 2022-11
Deposit Date Nov 30, 2022
Publicly Available Date Dec 2, 2022
Journal European Journal of Cancer Care
Print ISSN 1365-2354
Electronic ISSN 1365-2354
Peer Reviewed Peer Reviewed
Volume 31
Issue 6
Article Number e1371
DOI https://doi.org/10.1111/ecc.13719
Keywords Advance care planning, cancer, end of life, hope, international, qualitative research
Public URL https://nottingham-repository.worktribe.com/output/12022683
Publisher URL https://onlinelibrary.wiley.com/doi/10.1111/ecc.13719

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