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Stories of survival: children’s narratives of psychosocial well-being following paediatric critical illness or injury

Manning, Joseph C.; Hemingway, Pippa; Redsell, Sarah A.

Authors

Joseph C. Manning

Sarah A. Redsell

Abstract

Survival from critical illness can expose children to an array of negative physical and psychological problems. While the perspective of parents and professionals have been well documented, there is limited understanding of how childhood critical care survivors make sense of their experiences in relation to psychosocial well-being. We aimed to explore long-term psychosocial well-being of childhood survivors of critical illness through their stories. A qualitative, exploratory study using serial in-depth interviews was employed. Nine children (aged 6–15 years) were recruited to the study, 6–14 months post-discharge from a paediatric intensive care unit. Qualitative art-based methods were used with a responsive interviewing technique and data were analysed using narrative psychological analysis. Four themes emerged: disrupted lives and stories; survivors revealed uncertainties in their stories as they recalled their critical care event, exposure to death and dying; talking about extreme physical vulnerability provoked anxieties, mediating between different social worlds and identities; revealed the dynamic nature of survival and getting on with life; the prospective outlook survivors had on their existence despite newly manifesting adversities. Childhood survivors’ stories identify challenges and adversities that are faced when attempting to readjust to life following critical illness that both enhance and impair psychosocial well-being.

Journal Article Type Article
Publication Date Sep 1, 2017
Journal Journal of Child Health Care
Print ISSN 1367-4935
Electronic ISSN 1741-2889
Publisher SAGE Publications (UK and US)
Peer Reviewed Peer Reviewed
Volume 21
Issue 3
Pages 236-252
DOI https://doi.org/10.1177/1367493517717078
Keywords Nurses; Children; Paediatric intensive care; Survivors; Narratives
Publisher URL http://journals.sagepub.com/doi/10.1177/1367493517717078
Additional Information Copyright © 2018 by Association of British Pediatric Nurses, SAGE Publications

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