@article { , title = {Co-creation of information leaflets to meet the support needs of people living with Complex Regional Pain Syndrome (CRPS) through innovative use of wiki technology}, abstract = {Objective: People living with Complex Regional Pain Syndrome (CRPS) experience frustration with the lack of knowledge and understanding of CRPS as a pain condition. We report on our attempt to address this issue. Method: People living with CRPS taking part in a larger study were invited to co-construct a CRPS wiki page that addressed the areas in which they had experienced the most difficulty. A blank wiki page was set up for participants to populate with issues they felt needed to be raised and addressed. Results: Participants failed to engage with the wiki technology. We modified our procedure and completed an inductive analysis of a sister-forum which participants were using as part of the larger study. Six issues of importance were identified. We used the discussion forum threads to populate the themes. Due to a continued lack of engagement with the wiki technology, the team decided to create a suite of leaflets which were piloted with delegates at a CRPS patient conference. Conclusions: Future work should be mindful of the extent to which patients are able and willing to share their experiences through such technology. Striking the balance between patient-endorsed and researcher-driven co-creation of such material is imperative.}, doi = {10.3109/17538157.2015.1008491}, eissn = {1753-8165}, issn = {1753-8157}, issue = {3}, journal = {Informatics for Health and Social Care}, publicationstatus = {Published}, publisher = {Taylor \& Francis Open}, url = {https://nottingham-repository.worktribe.com/output/744505}, volume = {41}, keyword = {wiki, CRPS, information, support}, author = {Rodham, Karen and Gavin, Jeff and Coulson, Neil S. and Watts, Leon} }