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To What Extent Does the EU General Data Protection Regulation (GDPR) Apply to Citizen Scientist-Led Health Research with Mobile Devices?

Dove, Edward S.; Chen, Jiahong

To What Extent Does the EU General Data Protection Regulation (GDPR) Apply to Citizen Scientist-Led Health Research with Mobile Devices? Thumbnail


Authors

Edward S. Dove

Jiahong Chen



Abstract

In this article, we consider the possible application of the European General Data Protection Regulation (GDPR) to “citizen scientist”-led health research with mobile devices. We argue that the GDPR likely does cover this activity, depending on the specific context and the territorial scope. Remaining open questions that result from our analysis lead us to call for lex specialis that would provide greater clarity and certainty regarding the processing of health data by for research purposes, including these non-traditional researchers.

Citation

Dove, E. S., & Chen, J. (2020). To What Extent Does the EU General Data Protection Regulation (GDPR) Apply to Citizen Scientist-Led Health Research with Mobile Devices?. Journal of Law, Medicine and Ethics, 48(1_suppl), 187-195. https://doi.org/10.1177/1073110520917046

Journal Article Type Article
Acceptance Date Oct 22, 2019
Online Publication Date Apr 28, 2020
Publication Date Mar 1, 2020
Deposit Date Jan 21, 2020
Publicly Available Date Mar 29, 2024
Journal The Journal of Law, Medicine & Ethics
Print ISSN 1073-1105
Electronic ISSN 1748-720X
Publisher SAGE Publications
Peer Reviewed Peer Reviewed
Volume 48
Issue 1_suppl
Pages 187-195
DOI https://doi.org/10.1177/1073110520917046
Keywords Health Policy; Issues, ethics and legal aspects; General Medicine
Public URL https://nottingham-repository.worktribe.com/output/3777444
Publisher URL https://journals.sagepub.com/doi/full/10.1177/1073110520917046